Video Chronicle of Jacob’s first 13 years

It’s never easy to figure out what I can do for my son, but being a techy nerd I can always find some technical thingy to do for him. So before his Bar Mitzvah this past May (I know I forgot to post it earlier) I decided to create a brief videography of Jacob’s first […]

Why I Now Find Halloween Scary

Designing Jacob’s Halloween costumes is an annual project in our house. One year, we built a drum set around his wheelchair. Another year my husband, Andrew, constructed a race car emblazoned with a Ferrari logo. And this year, Jacob went as a Jake in the Box. It was a family venture: I came up with the idea, […]

Why Home Nursing Is Not Respite For One Mom

It looks good on paper. After a year in hospital with machines helping him breathe and tubes sucking out mucous that clogs his airway, my 13-year-old son Jacob, who has a rare neurodegenerative disorder and is prone to respiratory infections, was discharged last summer with 24-hour nursing care in our Toronto home. But aside from […]

What A Difference A Year Makes

Things can change a lot in one year. Last year at this time, I was helping Jacob settle in to his new school, working closely with his teacher and the school’s Vice-Principal to ensure a smooth transition. He was in a large classroom, over twenty kids, all of them strangers. The Special Needs Assistants assigned […]

Why Facebook Is My Lifeline

I love Facebook. It’s fun to see photos of smiling faces and breathtaking views from mountain tops at sunrise. I occasionally enjoy seeing a photo of a glistening filet of salmon nestled on a bed of artistically arranged kale and quinoa posted by a proud home-chef. And sometimes I chuckle at a cartoon posted by […]

With the blink of an eye, disabled Toronto boy becomes a bar mitzvah

The Times of Israel picked up the story and interviewed Marcy: Friends and family lift Jacob Trossman as they dance at his bar mitzvah celebration in Toronto on May 18, 2015. (Nechama Laitman Photography) Jacob Trossman celebrated his bar mitzvah in Toronto last month together with his family and friends. In many ways, his was […]

Disabled teen celebrates bar mitzvah at Sick Kids

With Jacob, front, at his bar mitzvah are, from left, his sister Sierra Trossman, his father Andrew Trossman, his mother Marcy White, and sister Jamie Trossman. NECHAMA LAITMAN PHOTO TORONTO — May 18 marked Jacob Trossman’s leap into manhood, and there wasn’t a dry eye in the room. Surrounded by 120 family members and close friends, […]

Listening to Those Who Cannot Speak

My son Jacob cannot speak. I am his voice. I am his biggest advocate and will fight as hard as I can to get him what he needs. My ongoing challenge is convincing people that Jacob understands what goes on around him and reminding people that there is a person inside his physically challenged twelve […]

Jacob’s Disease and the Impact on our Family

I hate PMD. On March 21, 2003, I was told that Pelizaeus-Merzbacher disease (PMD) was the cause of Jacob’s assorted medical issues. I’ve hated the disease ever since. When I learned that it is degenerative and would continue to burrow into my son’s brain and nervous system like a voracious mole, until it ate away […]

Jacob in the Hospital – It Takes a Village

  By Marcy White November 25, 2014 The most terrifying words I’ve ever heard were spoken 21 days ago, shortly after I pressed the red Nurse Call button beside my son’s bed in his hospital room. It was around 9 a.m. on the second morning of Jacob’s recent hospital admission for breathing-related issues. I was […]